Category Archives: mental illness

And then there was light …

beautiful, blinding, mind-boggling, life-altering light.

That is the nature of bi-polar disorder, or in the more politically correct lingo, manic-depressive disorder.

The verbiage doesn’t change the nature of it, it simply makes those who have no clue about what it is, entails or emulates, feel better about saying it out loud.

Sometimes there is darkness, but when the darkness lifts, there is light.

And light in the aftermath of darkness is profound.

I would love to be able to explain this phenomenon, but I can’t.

I couldn’t even begin to explain it.

You either understand it because you live it or because you know someone who suffers from it or you are completely clueless.

If you are clueless, then there is nothing I can offer that will make the light bulb flick on above your head.  You will never know the depths or the incredible  highs of a brain that is well beyond your understanding.

I’m sorry for you, but can’t help your indifference.

Cluelessness  (not a real word, I don’t think) isn’t necessarily a bad thing, but without some understanding of what goes on in the mind of a bipolarist (also not a real word), there is no way anyone can possibly understand how incredibly wonderful the moments of clarity, without racing thoughts, without disorientation, without doubt and insecurities can be.

Without the chaos, the clarity doesn’t mean anything and if one never has clarity, then their accomplishments will be mediocre at best.

It is like walking into a green, summer field and seeing a triple rainbow arch over the green field that is covered by white daisies with yellow centers.

That is what the light is like.

A moment of pure bliss that allows dreamless sleep and pure and beautiful clarity.

It allows me to understand what I have been misinterpreting, to find the truth within the lies.

It really is impossible to explain to someone who hasn’t lost, at some point, control of their conscious thought and then when hollowed out, to crash and burn.

Crashing is not the best feeling in the world, but it is necessary.  It is like the control-alt-delete of the psyche and sometimes, it is at this point that people who pledge their friendship and loyalty jump ship.

How … well, convenient.

When I am depressed, well, I keep that to myself.  No reason to add fuel to the fire of the witch-hunters.

I am who I am and will be who I’ll be.

I don’t need validation from people who pretend to support me when they have no interest in who I am at the core, in the depths of my heart, in the center of my soul.

I am me.  I am not ashamed to be such although there are times when I am made to believe that I should be.

We bipolarists are not an anomaly.  We are a force to be reckoned with because not only do we have brains that see, feel and hear everything, we are able to function during these times of chaos.

That makes us talented and creative and imaginative;  and above all, it makes us survivors.

Those who take us for granted or think they can use us for their exclusive pleasure are the losers.

They didn’t get it.

They will never get it.

They lost the race when they rolled their eyes at our idiosyncrasies.

Our idiosyncrasies and oddities are what set us apart from everyone else and it is something to be cherished and embraced.

We are different, yes, and in being so, we are not cast in the same mold as the rest of humanity.

In my book, that makes us someone special and special is a pretty awesome thing to be.

I embrace it, even when I want to be rid of it, because it calls me to understand more than I should have to, endure greater disappointments than I should have to and to know more than I would have were my brain like everyone else’s.

It is at this point that I ask, who is normal?  Who can maneuver through a mindfield (not a mine field, a mind one) and end up standing, head held high, solutions in hand?

Kind of puts it in perspective.

I have been mocked by ones that I truly thought I could trust.

I have been shunned by ones who have know me for years.

I have been abandoned by ones that I would have bet my life I could rely on.

These things, these events, these setbacks have not broken me yet made me more determined to be who I am.

I am content with myself even when I am discontent with myself.

I am special and the people who are like me will understand completely and hopefully feel special, too.

I am misunderstood and  I am ok with that.

It means that I am a mystery and, let’s be honest here … how cool is that?

We are a mystery wrapped in an enigma wrapped in a riddle.

That makes us cool in the “you wish you could see what my brain sees” kind of way.

Yes.  I am bipolar and I take each moment, each second, each event as it comes.

It is amazing what you can see when you take one moment at a time.

I love my life and though there are times when I forget who I am and can’t string words together to make coherent sentence, I wouldn’t change a thing.

Not  a single thing.

I. Am. Me … and I’m good with that.

only one of hundreds of my favorite things about West Side  Market in Cleveland, OH and bipolarist comfort food :)

only one of hundreds of my favorite things about West Side Market in Cleveland, OH and a favorite of this bipolarist’s comfort foods 🙂

It has been a long few days …

or has it been weeks?

I haven’t posted anything new.

No blog posts.

No photographs.

Nothing.

I have been in a holding pattern of sleepwalking, nightmares and erotic dreams that leave me confused, wondering and bewildered …

and all the while, trying my very best to make it, without losing my cool, through the seemingly endless days and eventful nights.

I have had patients cry on me, their families strike me, people pulling at my heartstrings which are linked directly to my tear ducts and during all of this, trying to find out if I am to blame for something I had no control over.

I wonder if I have severed a crucial friendship and have already began to mourn the loss of it.

I have a way of ruining beautiful things because I rarely feel worthy of them.

I have slept outside, sent messages I wasn’t aware of and tried desperately to hold it together.

A difficult few days, indeed.

But tonight changed all that.

It came a storm.

A big one, with lots of lightning and torrential rain.

Normally, during such an event, I would be set up on the porch with my tripod and camera, but this time was different.

This one wasn’t to be documented and photographed.

It was to set my spirit free.

And it did.

I stood on the porch with my jeans and t-shirt, getting soaked.

But as time passed, I wanted no earthly barriers between me and the blessing that God was giving me.

A cleansing.

A fresh beginning.

Letting the past be past and bygones be bygones and memories no more than a blip on my radar.

One piece of clothing after another was discarded until I found myself standing nude and vulnerable under the rain, with the lightning flashing, the thunder bellowing, echoing between the mountains and valleys …

tears running down my face.

I prayed to a God that I had decided had forgotten me.

He hadn’t.

I think He was just waiting for me to remember Him.

It was frightening.

It was freeing.

I was liberated from the hold this world had on me.

I was, for that span of time, one with nature and the God who created it.

I still struggle with the emotions and thoughts in my head, but He designed my brain and is well acquainted with my mindless and sometimes senseless ramblings.

He doesn’t hold them against me and so I won’t hold them against myself.

Not everyone believes in my God.  I don’t find fault with them.  I know what I know, they know what they know.

I can only be who I am and, despite all my faults, and they are many, I feel at peace.

And despite that, my friends who don’t believe in my God like me anyway.

I am humbled by that.

Just  as I accept them, they accept me.

With our differences of opinions and thoughts.

It is irrelevant.

Isn’t that what it was supposed to be like?

Love one another?

Are my thoughts still burning through my head? Yes.

Do I still sometimes feel out of control? Yes.

Do I have someone to share the thoughts and emotions with? Yes, and I am thankful for them.

Do I wonder if I am making the right choices? Yes.

Following Christ doesn’t mean that everything is just peachy.  In all honesty, it is the opposite.

I don’t do it right, I never have, but I hope to at least encourage somebody along the way.

And selfishly, I hope to be encouraged.

I wonder sometimes if I am nothing more than the punching bag of the universe.  I don’t mind it if it keeps someone else from suffering, but every now and then, it wears on the soul.

And then, an incredible storm comes, I stand in the rain, and all is right again.

The circle of life.

It is what it is what it is what it is.

It is what we make of it that counts.

So make it count.

a beautiful human, inside and out.

a beautiful human, inside and out.

Yesterday, a particularly difficult patient said …

you are acting odd; what is wrong with you?

I, with considerable effort, put my overloaded, hyper-extended, full-to-overflowing brain pan into “be nice” mode, rolled my eyes (of this I am certain) and said “I’m sorry, I was momentarily distracted by a conversation I had with your doctor about your condition”.

An over-the-top, bar none, bald-faced lie.

I was stalling until I could catch up to their hatefulness with a smile I didn’t feel and control of a finger I was having trouble restraining.

I was, instead, desperately trying to listen to what they said, their concerns, fears and complaints.

It was a strenuous effort to hold on to their words, to hear their voice.  I was elsewhere, anywhere, everywhere.

It is where I have been for the past few weeks and quite frankly, I was exhausted by trying to be here when I am there and there when I am here and somewhere when I am everywhere.

It is not polite to tell patients to shut the hell up … that all they do is moan and complain about things that are mundane on any ordinary day.

Never mind that, in this establishment, such activity is frowned upon.

Severely frowned upon.

I want to tell them this; listen … I got up this morning with a thousand random thoughts running through my head, barely remembered to wash my hair while I was in the shower (my legs remain unshaven because, dammit, I forgot while I was thinking about the sunrise over the desert west of Las Vegas, a sight I have never seen but hope to and the thought of shaving my legs never entered my mind during the sunrise scene.)

I washed my body simply because there was an escape clause somewhere in my brain that says you must take a shower daily, wash your hair and wash your body (with soap, not just water), but there is nothing that says “you know, you really should shave your legs”.

I suppose I realize that is a necessity once the hair starts being evident through my clothes.  Do people notice?  Probably.  Do I?  Not until I cause myself hair-inflicted injury during a nightmare (or on a good, though extremely rare night), an erotic,  racy dream of some sort.

Talk about a downer, when in the midst of a truly wonderful dream full of potential, my unshaven legs decide to speak up and thus take precedence over more pleasurable endeavors.

Even then, there is no guarantee that it will be done because my brain is on overdrive and going a thousand places at once.

I would love to be able to write a manual on how to talk and deal with a person when I (or a billion other people) are in the throes of a manic episode.

It would be short and to the point.

Shut the hell up unless the building is on fire and then, only tell me if I, personally, am on fire.

Otherwise, it likely won’t register.

In my head, I told that patient, a rude and hateful individual (and would be so even if I weren’t in my current state of mind) in the most placating, compassionate  tone I could muster that I was doing my best and was hoping to meet their needs.

It didn’t go down exactly like that and it is possible that somebody will be getting a phone call.  So be it.

It is what it is.

A typical day for me where I was up until this morning consists of waking up and immediately starting the internal argument of whether to shower first or brush my teeth; is the towel warmer on and did I take off my paper bracelet.  Oh no, is  there a clean towel to dry off with and is it in the towel warmer that I may have forgotten to turn on; damn this water is hot.  Damn, this water is cold.  I have soap in my eyes and while rinsing it out, don’t want to aspirate.  Lord this water is going to burn my eyes out of my head.  It just blasted in my ear.  How much do I need my eardrums.  Did I rinse the shampoo out of my hair.  What is that sound?  Oh, I remember, I started Mahler’s First on my Jawbone speaker but now wish I had put Chopin on because he does piano so well, but then Brian Crain is my now favorite, aside from my friend who plays my favorite song, one he wrote and played at my late husband’s funeral, on piano or my other friend, who plays piano and guitar, or at least, though little proof has been provided, I have heard tales.  He played for me once, at least I think he did, but that was a hundred years ago  and I may have imagined it… well not a hundred, but, at any rate, a long time; anyway,  maybe Brian would be best because he is predictable and while that can become tedious, it is, at times, soothing to know that what I hear will be similar and nearly indistinguishable from the last thirty things I  heard him play.

I love Brian, but  he has a one track mind and little imagination.  That is, of course, only my opinion and even though I am only now learning to play piano, I know what it should sound like.

If anyone sees a run-on sentence, feel free to comment to yourself because if you tell me, that restrained finger may very well break free.  Take no offense, however, because you have been warned.

I proclaim the fifth and refuse to incriminate myself even as I am incriminating myself.

Thank God I have some Barry and Sir Elton mixed in with it, otherwise, I would be imagining my myself in a mysterious musical Brigadoon where everything sounded the same and I would relive the same moment over and over.

God forbid.

I need to get dressed but the clothes I washed three days ago are in the dryer; if, however, I turn the dryer on refresh, they will be as good as new unless I left lipstick (which I rarely wear but for some stupid reason carry in my pocket) or one of my much beloved, blue ink, sharpie retractable pens.  They can make a mess on a uniform top that even a Tide Pen can’t fix and ruin a perfectly good pen at the same time.

My notes are extensive and must, without fail, be written in blue ink in the form of a retractable sharpie pen.  Anything else leaves me bewildered because, for no other reason, it just isn’t right.  Not now.  Now while my brain is on a vacation to Uranus, which has recently been deemed as nothing in particular which means, in essence, that my brain is just hanging out on the outskirts of the universe with the outcasts.

Perfect.

And now back to the patient who wants to know what is wrong with me … In the end, I think I will introduce him to the finger after all.  I think he could use it and since I have a stellar record as a nurse, I feel it is time to shake things up a bit.

So, in my mind, I give the patient the finger, tell hem to go jump in a lake and walk out of the room whistling.

I will know Monday if I actually did that or simply fantasized about it.

Secretly?  I’m hoping I did it.  I am feeling reckless and rebellious and find that my “give a damn” has a dead battery.

It is what it is and life, be it good, bad or indifferent, goes on.

As mamaw Daphne said, this too shall pass but when it does, it will leave a mark.

Thankfully, when this morning dawned, I found myself to be on the north side of sanity.

It’s all going to be ok.

So I am back to me until I find myself not myself the next time.

I am always thankful that Jesus loves me even when I am in a most unlovable state.  He is my rock and I have complete faith in Him that He will keep me no matter where my mind has gone.  He blesses me most often, it seems, when I am least deserving.

My life … it is always an adventure and (for the most part, except when it isn’t) a fun one.

Frenetic in China Town, NY … I can relate to thatNYCchinatown

That cherished moment …

when the cloud that surrounds me, taking me perilously close to a state of chaotic madness, lunacy, insanity; call it what you will, lifts.  It is a bit like going through a thick, consuming fog bank, unable to see in front, behind or on either side, left with only the senses (which are already stretched to the breaking point), to navigate.  Then, at the moment when I have reached what I perceive to be the pinnacle of hurt and disillusionment , the fog dissipates and nothing but clear, wonderful skies, stretch into the distance.  These are the days I live for.

I am thankful for many things, but when the fog lifts and I realize I have cleared another hurdle … well, I am especially thankful for these times.  They aren’t easy, not for myself nor those who suffer along with me by simply being  close to me in one way or another.  It seems that those I trust most carry the greatest burden.  I could apologize, but I have found that apologizing for who I am is a useless and undermining endeavor.  I am who I am and other than trying to live a more Godly life, I wouldn’t change a thing.  If an apology were needed, then I would have, obviously, been confiding in the wrong people; instead, they humble me with their tolerance.

I am thankful that each day brings me closer to that which I strive to be.  I don’t know, exactly, what I will be when I grow up, but I know, whatever it is, it will be wonderful.

littlestoney_020913-161

Isaiah 40:31 ~ But they that wait upon the Lord shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint.  Amen.

When I am manic …

everything becomes a challenge.  Thinking straight, keeping a single thought in my head, knowing reality from fantasy; all challenges.  I would be lying if I said that the feeling I get when in a manic state is anything but exhilarating, it is also exhausting.  The thoughts run through my mind at a speed that I cannot keep up with and the important things are often lost in the fray.  It is difficult to explain the whirlwind of thoughts and ideas to someone who has never experienced mania.  It is like being in a hurricane, protected from the wind and rain, but not the chaos.  How odd is that.  There are those who will read this post and say to themselves, “I know that feeling … I get it”.  At the same time, there will be ones who read it who say “that gal is as nutty as a fruitcake”.  But the reality of it is that I’m not nutty, or crazy or over the edge.  I am simply, at the moment, in a state of hypomania.

Manic stages are a part of my existence.  It took me a long time to realize that these episodes were, for me, part of normal life.  It is so abnormal to most people and they find it absurd on so many levels and simply, even if they try, cannot comprehend that the mind can warp at such a speed.  It is both fascinating and confusing, enlightening and disturbing.  I wish that there were words in my head to explain what I feel when I am in a manic state.  Though I have never tried cocaine, from the descriptions of those I know who have, it is similar to the feeling that comes when the hyperactivity takes over my mind and body and reality becomes blurred with fantasy; dreams become real and thoughts are not to be trusted.

I find it addictive, the feeling that nothing is impossible and all things are within my reach.  It is nearly a letdown when this feeling begins to ebb, which it must, if I am to survive; a disappointment to know that the chaos of my mind will, once again, become somewhat normal.  Being in this state does not change who I am at the core, but it changes what I am to the observer.  Try as I might, I have not found a way to harness the charge of energy that overtakes me and throws me into an atmosphere that is full of everything.  Again, to one who has never experienced such a moment, it is hard to explain.

Imagine being in a forest, a beautiful forest with the leaves alive and every growing thing beautiful with springtime in the mountains.  Now imagine that all the growing things have a personality and can interact, on a personal level, with actions and words. Being in a manic state is similar to that.  So much information.  So much stimulation.  It is like having goosebumps all the time.  Who doesn’t like goosebumps, right?  But constantly?  Not such a great thing.  But I am not alone in my experiences.   There are so many others who are in or soon will be, in the state I am in.   I count myself among the lucky ones that the manic cycles last only a few days as opposed to a few months, for I fear that I would really try to fly if it lasted more than a day or so.  Yes, I am one of the lucky ones.  But to those who live with this feeling day after day, month after month, I can understand how it would be so easy to try to find a way to put an end to everything.  To make it go away.  I spent one entire year of my life in such a state and am still wondering how I lived through it.   If it were not for the support of my family and friends along with the faith in my God that He would, eventually end this state of chaos, I could not have survived it.

There is nothing wrong with feeling this way, but it is difficult to function in a normally functioning world while in this place.  It takes extreme concentration and is, on every level, exhausting.  Knowing that there are others who face the same experiences is a help, but it doesn’t make living through an ordinary day any less stressful.  It is like fighting fire with gasoline.  The more I try to contain it, the more out of control it seems to be.  As much as the hypo-manic state makes me feel invincible, I am always glad to see it come to and end, for once again, I can feel normal in the sense of what the world deems normal.  I am different.  I don’t mind that. As a matter of fact, I embrace it, but being different has its limits and I am, almost always, happy when my thoughts slow down and I feel like I am, whether I am or not, in some modicum of control. I would not change my experiences for anything, for they make me who I am, but if it were in my power, I would change the perception of myself when I am not myself.  But life is life and I live with it.  And I’m not the only one.  That brings me comfort; knowing that I am not alone in my struggles.  I am encouraged.  And so a former blog post about encouragement comes full circle.  Nothing is as powerful as the sharing of life experiences.  It connects us all; I am not alone and for that, I am grateful.

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What can you do …

when you are trapped between that realm of normalcy and  insanity?   A tough question with no easy answer.  After  years of battling hours, days, even weeks of rapid cycling, I still have nothing to offer.  When those times come about, it seems that we, as beings, cease to belong to the world around us.  Everything is distorted and there is no orientation or order to any of it.  It comes down to the ability to realize what is happening and take it, as much as possible, in stride, until it passes.  I’m sure there are many people who have no idea what “rapid cycling” is and do not recognize it when people they know are going through it.  To the “normal” person, it looks like acting out or even attention seeking behavior.  Without knowledge of the situation, it would seem, and aptly so, that the person you know has become someone that you cannot comprehend.  I suppose, without actually meaning to be, this post is as much for the people who cannot fathom a place of uncertainty,  and downright dubiety than for those of us who know it more intimately than we would like.

Rapid cycling is a real and, most often, a permanent thing.  I am blessed to only have this occur once or twice a year; not so in my youth as it would happen two or three times per month and could, in the worst of times, last a week or more.   It is not uncommon for rapid cycling to last for months or even a year, but for the rest of us, the lucky ones,  rapid cycling comes with little or no trigger and can last as little as four hours.  The mood swings are awesome and completely, enigmatically  exhausting.  By the time it is over, I usually feel like I have been ran over by a very large, heavily loaded truck.  My brain is foggy, my senses slow and my reflexes, at least for a short time, are nonexistent.  In the grand scheme of things, it is not dissimilar to a seizure that lasts for hours.  Right and wrong seem to meld seamlessly and, from previous experience, it is most important to try to maintain control during one of these episodes.  After all these years, I have learned the warning signs and work very hard to isolate myself, as much as possible, until it has ran its course.

I know, without reservation, that there are others who feel the same way.  It makes me feel extremely vulnerable to speak of such things, but one person’s experience can often mean the difference between making or breaking to someone who feels the devastating, overwhelming range of emotions that define who we are at a given time.  Everyone experiences, at some point, sadness and joy, but this goes beyond that.  It is joy that is so inexplicable that jubilant takes a back seat; sadness that threatens our very being and, in the midst, every conceivable emotion in between.

I subscribe to the supposition that most adults have, at this point, learned to recognize the warning signs and may even be able to pinpoint the triggers; for that reason, this post is not directed to you.  It is directed to younger people who have thoughts and feelings that they cannot understand and find that, when trying to describe it, the people they love and trust do not understand.  It is important to know that it is likely that they will never truly understand.  They will accept you, humor you, try to get you, but unless they have experienced the phenomenon, they will not ever really and truly know what you speak of.  BUT … that doesn’t mean that there aren’t people who do.

Look inside yourself, learn to know the warning signs and be aware of the consequences of rash and often, irrational choices.  Even when you feel out of control, at the core, you are in control.  The decisions and choices you make, the roads you take, the destinations you choose will all define who you are in the end.  Just because you have moments of weakness doesn’t give you free reign to make poor choices.  It is of inimitable importance that one understands the state they are in and realizes that the choices they would normally make are much, much more complicated during this time.

If I can do nothing else, I encourage everyone to learn about rapid cycling so that when faced with it, whether personally or through someone they know and love, they will understand that it isn’t something that can fixed by advice.  It can’t be fixed by instruction or direction and it has no understanding of “buckling down”.

It just is.  And, as quickly as it comes, it will end.  Have faith that God will not let you destroy yourself and know, with certainty, that this too, shall pass.  I tell you this from experience so that  you, whoever you are, will know that you are not alone.

I believe in an Awesome God and know that the experiences and trials we face will help us help others.  If I didn’t believe in God and the unshakable Spirit of Christ, then I would be certain that I was cursed.  But I am not cursed, I am me and I will make the very best of it that I can.  Be encouraged and then encourage others.  Your life will be richer for it.