Category Archives: alone

When God gives one a heart of compassion …

it is understood that it will get broken.

There is no way around it.

I am still learning this.

I find that is is both  an honor and a privilege to watch the end of life come to pass.

It isn’t easy nor can it be considered pleasant, but it is a part of life that not everyone gets to see.

The living years is what most of us look for, find pleasure in and hope to be a part of.

But to be present when a spirit leaves this world is nothing short of amazing.

The last breath.

The last heartbeat.

The last moment.

I cannot help but cry for it is, in it’s way, very sad … and yet, when there was suffering, it is also a comfort.

I try, in my weak way, to console the ones left behind, but at that particular moment, there really are no words to say.

I can only be there, in the background, in the edges of the moment, to hold a hand or wrap my arm around those who need the contact.

I’m not, by nature, a hugger or toucher.

It doesn’t really come naturally to me as it does to true nurturers … and yet, I find myself being pulled into the emotion.

It is difficult, but I cannot turn them away.

Not in their moment of need.

Maybe I am weak. But if I can offer some bit of strength in their moment of weakness, then my strength has been made manifest.

I can do, for this moment, what I have learned through experience to do.  Not book experience, or clinical experience, but life experience.

I understand loss, especially unexpected loss that blindsides you and leaves you reeling from words left unsaid.

It is what it is and there are no do-overs.

It is enough to know that you loved someone while they lived in a way that they knew, unconditionally, that they were loved.

It is enough.

Move forward as you can, but whatever the cost, move forward.

To remain where you are, in grief and sorrow is the last thing in the world the one you lost would want.

Don”t be afraid to live.

If you aren’t afraid to live, then when your time comes, you won’t be afraid to die.

It is a circle.

Don’t break it.

Sometimes, for reasons I can’t explain …

I cry.

And then, when I go to work, which unfortunately, I have to, I cry there too.

I try to hide it, but sometimes, it is obviously, due to the questions and odd looks, evident, for I am questioned.

Or maybe mentally assaulted is the better description.

Have you been crying?

What have you been crying about?

What’s wrong?

Why yes, I want to say … I have been crying nearly inconsolably for absolutely no reason at all.

None.

I have broken things that I don’t really care about, deleted things that I did and find myself on the outside of everything I hold dear to my heart … but that is simply a byproduct.

Just forty-eight hours ago, I was manic and driving 90 miles a hour to keep up with my thoughts.

But there were no tears.

Only euphoria.

But now, I cry just to be crying.

One jag after another until I have a headache and nothing, other than red and swollen eyes, to show for it.

I cry at song lyrics, at the rebuff from a friend, because the light turned red, for the homeless man I saw at the intersection.

I have no control over it.

I want to, but it is beyond what I am capable of.

For whatever reason, it pisses people off when you tell them you don’t know what you are crying about.

What?

Do they never, ever, ever cry without a reason?

Really?  Do they actually expect people to believe that?

Don’t worry, though, not everyone who swings between euphoria, ecstasy, and suddenly in the dredges of despair but still thinking in terms of the ecstasy factor, is nuts.

A few of us hold a golden trophy with our bipolar names on it, but not everyone.

It isn’t contagious.  Remember that.

It.

Isn’t.

Contagious.

And the oddness of it, in itself, is, in that in itself, there is oddness.

They want to know why.

There isn’t a why.

They want to know what about.

There isn’t a what about.

I used a gallon of the “it get’s the red out” Visine today.  A useless fluid that burns the eyes and does little to hide the fact that I was crying about nothing in particular.

Why is it so important to have something to cry about.  There are moments, such as the one I am currently in, that I cry because I simply can’t stop it.

I could make up stuff to cry about, but I shouldn’t have to.

I should be able to maneuver though this stage of my, what should I call it?, psychosis? without being put on the spot to try to explain the unexplainable.

Maybe I should start telling people I have a hangover.  Maybe that would be more well received than the response of I’m not crying about anything in particular, I’m just crying.

Because I’m nuts.

That always goes over well.

I’m nuts.

Does that soothe your mind?   Always have been and have little hope of being otherwise.

Sometimes I cry.

Get used to it or get over it.

If I am very lucky, it will only last a day or two and I can go back to being simply, though wonderfully, semi-manic.

I can assure you, it is much preferred.

I don’t get to the crying stage very often, praise the Good Lord, but when I do, I’m there.

Nothing that can be said, no pats on the head or uninvited and unwanted hugs can change it.

It is what it is.  Those who feel this way from time to time know, without a shadow of a doubt the sheer amount of courage it takes to move from one minute, one hour, one day into the other.

The rest of you … I will always be an enigma and I am tired of trying to explain it.

It is what it is and that is simply the way of it.

It doesn’t change who I am because this, accepted or not, is who I am.

If you know me you already know that.

If you don’t, you never will.

No hard feelings.

Tomorrow is a brand new day.

a light shining in the darkness, whether in day or night, is a grand thing.

a light shining in the darkness, whether in day or night, is a grand thing.

what is it about dreams …

that seem to plot the course of the day ahead.

I have always, nearly without fail, remembered in detail and almost painful clarity, my dreams.

Sometimes they are of strangers and other times, erotic and provocative images and happenings of and including  people I am acquainted with.

Images that have no business being in my head are there and they tempt me to try to relive them in reality as well as in the dreams, of which I have no control, in which they were born.

I don’t make a secret of them.  I share them with the cohabitants of my dreams, often to my regret afterward, but nonetheless, I find that the ability to lie escapes me.

It doesn’t help matters that I, on occasion, am a blabbermouth and just blurt things out at random.  A curse and one of the things that, were I able, would immediately change about myself.

Those, I think, are more disturbing than the bloody, murderous ones for they are more realistic and leave me feeling vulnerable and exposed.

And then there are the non-dreams that are climatic in their own weird and distorted way.

I am certain, given facts that I am sure of, that I sleepwalked last night.

Things that were present when I went to bed were missing and no evidence, anywhere, of their disappearance, could be found.

I looked.

In the trash.

Under the couch cushions.

Under my mattress.

I know what was there and what is now missing so either I walked (and ate chocolate Nekot cookies) in my sleep, or there was an intruder who only wanted my cookies.

And who, pray tell,  breaks into a house leaving a priceless collection of vintage vinyl and takes only chocolate-peanut butter cookies.

Especially if they know me and know that I sleep with a very large cast-iron skillet capable of causing a serious brain hemorrhage or, if aimed just right, instant death

Nobody, that’s who.

So since the latter is improbable, I have only left to assume that I am, once again, up to my old tricks.

Walking and performing tasks, like eating, cooking and cleaning, in my sleep.

It disturbs me on some level that I do things in the night that I don’t remember.  It should disturb me.  It should disturb anyone.

But I know the cause, or at least I think I do.

For several weeks, as anyone who knows anything about me knows, I was manic to the point of being carted off by the men in white coats.

I thought it would never end and once it did, I missed it immediately.  That rush of feeling, the power of confidence that, in a normal state, I lack.

But one phase which lasts so long does not go without the alter-ego phase coming in to claim their share of the  psychosis.

I call it psychosis because what else is one going to call it … hyper to the point of explosion one moment and despondent to the point of mediocrity the next.

I live this every day, every week, every month.  One would think that by now, I would know what was coming next.

I don’t.  And people who try to pinhole me into their idea of normalcy don’t either and end up doing nothing more than pissing me off.

As do those who lie to me. Or make excuses instead of just being up front.

An omission or generated excuse is no better or worse than a lie and I put them all in the same bag.

I expect people to be straight with me no matter what and if they aren’t then they immediately lose their credibility and, as far as I am concerned are no longer relevant in my life.

I no longer listen to their words for they are, from that moment, nothing more than blather.  Filler because they can’t think of anything useful to say and therefore are useless to me on any conceivable level.

It is disappointing to me to think that I have friends who pretend to understand me only to find out that not only do they not understand me, they have no intention to.

Valuable time wasted if you ask me.

I try to conserve the space in my mind for those who actively want to be a part of my life.  I realize that I try too hard to make friendships sometimes.  I find people who pretend to understand me but have no real inkling as to who I am or what makes me tick.

It is a disappointment to realize that I have been, for lack of a better term, led on by their pretense.

But in time, all is revealed and life goes on.

I don’t hold it against the pretenders because in all essence, I have better things to do than hold a grudge.

But I will be more cautious in the future.  Once a manipulator, always one.

Funny, isn’t it, how they don’t see themselves that way.

Life. Goes. On.  and that is just the way of it.

I may be hanging, at times, by a thread, but in my mind, I am happy simply to be hanging.

Until next time, be well, be yourself and know that whatever you learn today will be most useful at some point (unless is is geometry and the jury is still out on that one)

in reality, what dreams are made of ...

in reality, what dreams are made of …

James Taylor sang …

“I’ve seen fire and I’ve seen rain …” he saw sunny days that he thought would never end.

I feel that way sometimes.

Like the sun will last forever and the foreboding darkness of an impending storm will elude me and deprive me of the comfort that only such an awe-inspiring event of God-created nature can bring.

I found myself today in the company of a family who was waiting for their mother to die.

I have spent an hour or so with them every day for the past couple of weeks and have come to know them, to care about them, to love them.

I’ve seen photographs of their children and grandchildren, of weddings and birthday parties.

I’ve seen faces with smiles that don’t quite reach the eyes because there was worry there.

A sadness.

A knowing.

A sorrow for what was to come.

I didn’t want to go into that room today.  I wanted to be a coward and take the coward’s way out and simply say that they were unavailable.

It would have been a lie, though, even if only to myself.

One that would settle smoothly at the time and then plague me in the wee hours as I remembered the fear, sorrow and sense of hopelessness on the faces that I was trying so hard to comfort.

So I went into the room I didn’t want to go in, sat with people I had come to know and love and waited with them while their mother took her last breath.

It was humbling to be accepted into this place of sorrow and grief as though I was one of them.

I have sat with them, held their hands, cried with them, prayed with them and now, I mourn for them.

It was obvious, when I went to visit them today, that the time was limited.  While I didn’t want to bring negative connotations to an already tense situation, I advised them to call any other family members who should be there to come to be with them.

Maybe I overstepped my bounds.  No, there is no maybe about it, I did overstep them.  But in my nearly thirty years as a nurse, I haven’t always played by the rules.

Sometimes I play by the heart, which often breaks the rules.

But over the years, I have seen death enough to know what it looks like.

I couldn’t live with the knowledge that there were ones that I had met and bonded with before that weren’t there now when the moment they had been dreading, avoiding, rationalizing, but knew was impending, had come.

I felt like a traitor.  Like someone who had come only to say that this is it.

The last hoorah.

The final moments of a life well lived.

I stood in the corner while the family stood around the bed, each one with their hand on the one they loved so dearly, as she took her last breath and left this world.

Before she did, she opened her eyes, something she hadn’t done in days, and looked directly at each one present; saying goodbye, farewell, move on, don’t cry.

Silent tears ran down my face as I watched them watch her as her soul departed from her ravaged body.

I remembered thinking how I wish my Jim had someone with him when he died.  And then I remember how much of a loner he was.  Even with me, he was alone.  I wonder now if he was glad that he was alone when he died.  Glad that he didn’t have to see the fear and sorrow on a face that would wish him to go on when he couldn’t, or maybe simply didn’t want to.

I don’t mourn him anymore.  I think of him and of the life we shared, but I have let him go.  He is a dear and well-loved memory, but not an anchor to weigh me down.  That can bring good to no-one.  And I believe it would sadden him if he thought that his death had broken my spirit.

I slipped out of the room, unnoticed, by the family.  There was nothing else I do, nothing else I could offer; no words I could say to comfort them in that moment.

Trying to do so would be futile and would, I feared, break the trust that they had placed in me to understand them in their moment of weakness.

I had given them my heart, which was now breaking for each one of them.  My tears won’t help them anymore than their own will.

I hope for them, this night, peace in the knowledge that they not only loved, with such passion, their mother, sister, grandmother, wife … but that she knew, with every ounce of her being, that they did.

I like to think that knowing that you gave everything you had to someone you loved is enough to sustain them at their last moments.

I will cry myself to sleep tonight for a family I didn’t know just two weeks ago, a family now broken and irrevocably changed.

I will photograph the living and mourn the dead.  This is the life, while I may not have chosen willingly, was given to me to live.

If my heart shatters a bit in order to bring comfort to another, then it was pain well spent.

I will live it the best I am able, deal with it when I can, falter when I can’t and then remember, while trying to remind others, that even when it doesn’t seem so, life goes on.

There isn’t, really, any more anyone can do other than the best they can.

And then, you move on, for if you don’t move forward, there isn’t any hope and hope is, and will always be, one of the most wonderful things life has to offer.

Without hope, there isn’t anything left.  So hope.  Seek happiness in the face of sorrow.  Find beauty in the midst of sorrow and disaster and know, beyond all else that hope is a good thing … and no good thing, as long as there are people who remember what was, never really dies.

Love is the most powerful of emotions

Love is the most powerful of emotions

soulful eyes

soulful eyes

fear and uncertainty …

filled his blue eyes, open wide and full of worry.  At first glance, from the hallway, the only visible things were a single foot protruding from beneath a blanket and a partially filled urinal on the tray table.

I wondered, before walking into the room to speak with him, what I would find.  I was already feeling badly for him simply knowing that a container holding his urine sat on a table where soon, his lunch would be placed.

I felt that surely, had there been family present, that would not have been the case and, not to my surprise, I found him alone.

He was worried.  It was evident in his sad, sad eyes.  They were wide open, showing the incredible blueness, wrinkled at the edges from a lifetime of emotion; laughter, tears, anger.

He was a widower.  He had children, but his voice betrayed his attempt at courage as he spoke of wishing to go home.  His blue eyes became even more sad as he spoke of a home that he knew, in his heart, he would not return to.

I felt a wave of righteous fury toward his children, none of whom had been to visit him during his week-long stay in the hospital, as he spoke of having nobody to care for him.

I thought of my own father.  Thought of his sadness were he to lose my mother and be left to live out his days without the woman that he loved more than life.

Many times, and to my mother I have said such, I have prayed that if my parents cannot die at the same time, I hope my dad goes first.  I cannot bear to even entertain the thought of him trying to cope without my mother.  He is strong in body and spirit, but would be lost without her.

She, on the other hand, is tough as nails.  A survivor full of beauty and strength and would, though with sadness and tears, move on and make the best of a seriously bad situation.

While her tears would cut me deeply, tears shed by my dad shatter me.  I would be of little use to him, not that he would last for long without her as he would soon die of sadness.  I know this as surely as I know the sun rises in the East.

But I digress.  I wasn’t speaking of my parents, but of poor, sad-eyed mister who lay in the hospital bed, dwarfed by the room, confused by the lingo, hurt by the antipathy of his children.

He wanted to go home and held, other than that wish, no other ambition or hope.

It would not come to pass.  He would not go home.  Not to the home where he lived for over fifty years with his wife before she died.  Not to the home where his children, who had now abandoned him, had been raised.

He would not go back to where the garden once thrived with vegetables and a myriad of flowers in the summertime, the trees bursting full and golden in Autumn.

He would not walk the familiar halls that had brought him comfort in his time of need.

He would not sleep in the bed that conformed to his body due to years of use.

He would be a stranger among strangers.

It took all of my strength and everything I could dig from the depths of myself to not burst into tears while speaking to him; seeing him old and broken and alone.

His wide eyes, full of worry, filled me with compassion and empathy.  I, in my mind and heart, brought him home with me.  Though there is an unwritten rule among nurses to not become too attached, he has been here, dancing on the edges of my thoughts, since the day I met him.

I have cried for him, prayed for him and inwardly cursed his children for their inattentiveness.   I want, in these last years of his life, happiness for him.

I try no to get too attached, but I am human and I fall in love with those the world has so blithely displaced.  He will remain in my prayers and though I will likely never see him again, his eyes will haunt me.

They haunt me now as do so many others; young, old, suffering, addicted, betrayed, sickened, world-weary souls who need, more than anything else, to be loved.

I have said it before and I reiterate it now … I am too softhearted to be a  nurse.  I always have been.

violinhands

Leviticus 19:32  ~ Thou shalt rise up before the hoary head, and honor the face of the old man, and fear thy God: I am the Lord.